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2. List of Rare Diseases | A-Z Database | NORD

   rarediseases.org/rare-diseases

   There are over 10,000 rare diseases that together affect more than 30 million Americans. NORD is dedicated to the identification, treatment, and cure of these diseases through comprehensive education, advocacy, research, and service programs.

3. National Organization for Rare Disorders | NORD

   rarediseases.org

   NORD advances practical, meaningful, and enduring change so people with rare diseases can live their fullest and best lives. Every day, we elevate care, advance research, and drive policy in a purposeful and holistic manner to lift up the rare disease community.

4. Getting Started - Understanding Rare Disease Information | NORD

   rarediseases.org/understanding-rare-disease

   List of Rare Diseases; Gene Therapy for Rare Disease; Find Clinical Trials & Research Studies; For researchers. Request for Proposals; Research Grant Programs; Data Standards for Rare Diseases; For clinicians. Resources for Patients; Find a Rare Disease Care Center; Continuing Medical Education (CME) Connect. IAMRARE ® Program Powered by NORD

5. Rare Disease Facts and Statistics | NORD

   rarediseases.org/understanding-rare-disease/rare-disease-facts-and-statistics

   Rare Disease Facts & Statistics. NORD’s Rare Disease Video Library provides brief introductions to rare disease topics for patients and caregivers. NORD collaborates with medical experts, patient organizations and videographers to develop the videos, which are made possible by individual donations, educational grants, and corporate sponsorships.

6. Rare Disease Caregivers: You’re Not Alone

   rarediseases.org/caregivers-youre-not-alone

   Caring for children with a rare disease can feel isolating. With NORD, Kate knows her family isn’t alone. “ It’s hard for people to understand what we need to survive,” she says.

7. TRMU Deficiency - Symptoms, Causes, Treatment | NORD

   rarediseases.org/rare-diseases/trmu-deficiency

   Get Information about a Rare Disease. Use the form below to explore NORD's comprehensive rare disease database. Search for detailed information on rare diseases, including NORD's authoritative Rare Disease Reports and data from other reliable sources. * = NORD Rare Disease Report

8. Rare Disease Drug Development Series: What Patients and Advocates...

   learn.rarediseases.org/courses/rare-disease-drug-development-series-what...

   The focus of this series is on rare diseases and how patients and patient advocates can play a significant role in rare disease drug development. The course is available free online and can be accessed on mobile.

9. fragile X syndrome - National Organization for Rare Disorders

   rarediseases.org/es/mondo-disease/fragile-x-syndrome

   Get Information about a Rare Disease. Use the form below to explore NORD's comprehensive rare disease database. Search for detailed information on rare diseases, including NORD's authoritative Rare Disease Reports and data from other reliable sources. * = NORD Rare Disease Report

10. What You Should Know About Undiagnosed Rare Diseases | NORD

    rarediseases.org/understanding-rare-disease/undiagnosed-diseases

    What happens when your doctors can't diagnose you? Help is available for undiagnosed rare disease

11. idiopathic syringomyelia - National Organization for Rare...

    rarediseases.org/es/mondo-disease/idiopathic-syringomyelia

    Get Information about a Rare Disease. Use the form below to explore NORD's comprehensive rare disease database. Search for detailed information on rare diseases, including NORD's authoritative Rare Disease Reports and data from other reliable sources. * = NORD Rare Disease Report