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IMHA advocates respresent the wishes of the people they advocate for regardless of the wishes of the family. They share all the information they have with a service user regardless of what impact they think this information will have. They ask the questions necessary to mediate in decision making but do not make decisions on the behalf of patients.
The patient advocate [1] may be an individual or an organization, concerned with healthcare standards or with one specific group of disorders. The terms patient advocate and patient advocacy can refer both to individual advocates providing services that organizations also provide, and to organizations whose functions extend to individual ...
During a 2009 investigation into the drug industry's influence on the practice of medicine, U.S. Senator Chuck Grassley (R-IA) sent letters to NAMI and about a dozen other influential disease and patient advocacy organizations asking about their ties to drug and device makers. The investigation confirmed pharmaceutical companies provided a ...
Managed groups do not meet all the criteria for self-help groups, and so should be designated professionally controlled support groups. Examples of managed groups are common with support groups in hospitals, such as those with breast cancer survivors and patients that may be managed by a nurse or therapist in some professional fashion. [12]
Several studies have shown the importance of the Internet in providing social support, particularly to groups with chronic health problems. [7] Especially in cases of uncommon ailments, a sense of community and understanding in spite of great geographical distances can be important, in addition to sharing of knowledge.
There were three critical elements of developing a profession on the table in these early years: association, credentialing and education. The Society for Healthcare Consumer Advocacy was founded as an association of mainly hospital-based patient advocates, without the autonomy characteristic of a profession: it was and is a member association of the American Hospital Association.
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