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[13] [14] There have been instances where the failure to obtain proper assent (or even parental consent) has been directly opposed to the interests of the patient. In late 2000, the Washington Post broke the story of a 10-year-old girl who died during a meningitis clinical study conducted in Kano, Nigeria, by the drug giant Pfizer. [15]
Dynamic consent is an approach to informed consent that enables on-going engagement and communication between individuals and the users and custodians of their data. It is designed to address the many issues that are raised by the use of digital technologies in research and clinical care that enable the wide-scale use, linkage, analysis and integration of diverse datasets and the use of AI and ...
Unethical human experimentation is human experimentation that violates the principles of medical ethics.Such practices have included denying patients the right to informed consent, using pseudoscientific frameworks such as race science, and torturing people under the guise of research.
Example of informed consent document from the PARAMOUNT trial. Informed consent is a principle in medical ethics, medical law, media studies, and other fields, that a person must have sufficient information and understanding before making decisions about accepting risk, such as their medical care.
The San Antonio Contraceptive Study was a clinical research study published in 1971 about the side effects of oral contraceptives. Women coming to a clinic in San Antonio, Texas to prevent pregnancies were not told they were participating in a research study or receiving placebos. Ten of the women became pregnant while on placebos. [183] [184 ...
The Belmont Report is a 1978 report created by the National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research.Its full title is the Belmont Report: Ethical Principles and Guidelines for the Protection of Human Subjects of Research, Report of the National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research.
COPPA 2.0 would have required youth aged 13, 14, 15 or 16 to consent to the processing of their own data, but would not have required the parents of 13-16 year olds to consent to the data processing. [20] COPPA 2.0, as well as KOSA, failed to pass the House when the 118th US Congress expired on January 3, 2025. [20]
Natalie Beck and Jennifer Wong in their 2020 paper "A Meta-Analysis of the Effects of Wilderness Therapy on Delinquent Behaviors Among Youth" offer three models of wilderness therapy: an expedition model, generally lasting for less than 8 weeks; a base camp model, where clients stay at a central location but engage in "short wilderness excursions"; and a long-term model, where clients engage ...
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