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The Dravet Syndrome Foundation was founded by parents with the purpose of expediting research to find a cure and better treatments for their afflicted children. [2] It was established in the state of Connecticut and was designated a tax-exempt public charity in the United States in September 2009 by the Internal Revenue Service under Section 501(c)3.
The Epilepsy Foundation received anecdotal reports of patients experiencing seizures and side effects after switching drugs, and tried to convince the U.S. Food and Drug Administration (FDA) in 1999 that there was a problem, but the FDA decided there was no evidence. In 2006, foundation leaders convened a committee of medical experts, and its ...
Epilepsy Outlook is a charity based in Hartlepool which provides free and confidential practical support, advice and information for people with epilepsy and their carers. [4] Their support services include supported volunteer placements, a drop-in centre, epilepsy awareness training, an art therapy group and welfare benefits advice. Each year ...
Distributed Proofreaders is a non-profit organization in which volunteers proofread pages of digitized text in order to prepare e-books for submission to Project Gutenberg, a free e-book library ...
The International Dravet Epilepsy Action League (IDEA League) is an American non-profit organization that has created an international partnership of parents and professionals with the purpose of creating greater awareness and understanding of Dravet syndrome and the spectrum of related genetic forms of epilepsy. The IDEA League is a nonprofit ...
The International Bureau for Epilepsy (IBE) is a non-for-profit started in 1961 [1] which aims to improve the social condition and quality of life of people with epilepsy. [2] The organization addresses social problems such as employment, education, driving license restrictions and public awareness. [ 3 ]
Epilepsy Society is a leading epilepsy medical charity supporting all people affected by epilepsy. The services provided by the charity include: Residential care for over 100 adults within care homes at the Chalfont Centre and also in supported living accommodation.
The Epilepsy Association of Nova Scotia joined Cassidy and helped to spread awareness of Cassidy's initiative. [3] In 2009, the New York-based Anita Kaufmann Foundation and Epilepsy Association of Nova Scotia joined to launch Purple Day internationally and increase the involvement of organizations, schools, businesses, politicians and celebrities.