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The use of Clinical Data Repositories could provide a wealth of knowledge about patients, their medical conditions, and their outcome. The database could serve as a way to study the relationship and potential patterns between disease progression and management. The term "Medical Data Mining" has been coined for this method of research.
A current research information system (CRIS) is a database or other information system to store, manage and exchange contextual metadata for the research activity funded by a research funder or conducted at a research-performing organisation (or aggregation thereof). [1]
Clinical data management (CDM) is a critical process in clinical research, which leads to generation of high-quality, reliable, and statistically sound data from clinical trials. [1] Clinical data management ensures collection, integration and availability of data at appropriate quality and cost.
Dryad: repository of data underlying scientific publications in the basic and applied biosciences; Edinburgh Mouse Atlas; EPD Eukaryotic Promoter Database; FINDbase (the Frequency of INherited Disorders database) GigaDB: repository of large scale datasets underlying scientific publications in the biological and biomedical research
Yes Data can be ingested from a wide variety of local sources (including HR, grants, course databases, institutional repositories, membership rosters, research interests, and many others) to reflect a complete view of the institution's priorities and efforts.
The patient health record is the primary legal record documenting the health care services provided to a person in any aspect of the health care system. The term includes routine clinical or office records, records of care in any health related setting, preventive care, lifestyle evaluation, research protocols and various clinical databases.
A data library, data archive, or data repository is a collection of numeric and/or geospatial data sets for secondary use in research. A data library is normally part of a larger institution (academic, corporate, scientific, medical, governmental, etc.). established for research data archiving and to serve the data users of that organisation.
Data sharing is the practice of making data used for scholarly research available to other investigators. Many funding agencies, institutions, and publication venues have policies regarding data sharing because transparency and openness are considered by many to be part of the scientific method .