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Huntington's disease (HD), also known as Huntington's chorea, is an incurable neurodegenerative disease [7] that is mostly inherited. [8] The earliest symptoms are often subtle problems with mood or mental/psychiatric abilities. [9] [1] A general lack of coordination and an unsteady gait often follow. [2]
The Society comprises 50+ volunteer-led local chapters and affiliates across the country with its headquarters in New York City. Additionally, HDSA hosts more than 200 support groups for people with HD, their families, caregivers and people at-risk, and is a resource on Huntington's Disease for medical professionals and the general public. [1]
Alice Ruth Wexler was born May 31, 1942, in New York, New York, [2] to Leonore (Sabin) and Milton. Though her parents divorced in 1962, her mother's diagnosis of Huntington's disease late in the 1960s became a central research focus of the family. [3]
Huntington's disease is an autosomal dominant disorder, inherited from Carol Carr's husband, Hoyt Scott. Hoyt, a factory worker, had lost a sister to the disease as well as a brother, who committed suicide after being diagnosed. Hoyt's condition deteriorated and he died unable to move, swallow, or speak in 1995.
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The Huntington's disease Outreach Project for Education at Stanford (HOPES) is a student-run project at Stanford University dedicated to making scientific information about Huntington's disease (HD) more readily accessible to patients and the public.
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In March 2018, Doctors Hospital opened a freestanding emergency room in nearby Manatee County, Florida named Doctors Hospital of Sarasota ER in Lakewood Ranch. [2] The facility is located on State Road 70, east of I-75. The hospital was renamed to its current name in June 2022. [3]
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