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Lymphangioleiomyomatosis (LAM) is a rare, progressive and systemic disease that typically results in cystic lung destruction. It predominantly affects women, especially during childbearing years. [1]
PAM is one of the rare lung diseases currently being studied by the Rare Lung Diseases Consortium. Pulmonary Alveolar Microlithiasis patients, families, and caregivers are encouraged to join the NIH Rare Lung Diseases Consortium Contact Registry. This is a privacy protected site that provides up-to-date information for individuals interested in ...
This line stands out against the adjacent, uniformly dense lung fields caused by extensive calcifications. [2] Computed Tomography (CT): CT scans provide a more detailed view, revealing a clear demarcation between the calcified lung parenchyma and the spared subpleural area. The black pleura sign is evident as a peripheral lucent rim beneath ...
Some sources claim this entity represents 3 to 6% of pneumothorax in women. [16] In regard of the low incidence of primary spontaneous pneumothorax (i.e. not due to surgical trauma etc.) in women (about 1/100'000/year), [16] this is a very rare condition.
Woman Living with Ultra-Rare Disease Talks 'Reclaiming' Her Identity After Spending Life Feeling Like 'a Diagnosis' (Exclusive) Angela Andaloro December 12, 2024 at 3:41 PM
Pulmonary alveolar proteinosis (PAP) is a rare lung disorder characterized by an abnormal accumulation of surfactant-derived lipoprotein compounds within the alveoli of the lung. The accumulated substances interfere with the normal gas exchange and expansion of the lungs, ultimately leading to difficulty breathing and a predisposition to ...
Merck said its drug met the main goal of significantly reducing the time to disease worsening, lung transplantation or death in a late-stage study of 172 patients with advanced stages of the ...
Idiopathic pulmonary fibrosis (IPF) synonymous with cryptogenic fibrosing alveolitis [5] is a rare, progressive illness of the respiratory system, characterized by the thickening and stiffening of lung tissue, associated with the formation of scar tissue.
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