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  2. Rasmussen syndrome - Wikipedia

    en.wikipedia.org/wiki/Rasmussen_syndrome

    Rasmussen syndrome or Rasmussen's encephalitis is a rare inflammatory neurological disease, characterized by frequent and severe seizures, loss of motor skills and speech, hemiparesis (weakness on one side of the body), encephalitis (inflammation of the brain), and dementia.

  3. Cerebellar ataxia, neuropathy, vestibular areflexia syndrome

    en.wikipedia.org/wiki/Cerebellar_ataxia...

    Cerebellar ataxia with neuropathy and vestibular areflexia syndrome (CANVAS) is an autosomal recessive late-onset heredodegenerative multisystem neurological disease. The symptoms include poor balance and difficulty walking. Chronic cough and difficulty swallowing may also be present.

  4. Fields condition - Wikipedia

    en.wikipedia.org/wiki/Fields_condition

    Fields condition, [1] also known as Fields' disease, [2] [3] is a neuromuscular disease that is considered the rarest medical condition in the world. It was named after Welsh identical twins Catherine and Kirstie Fields, who are two of only three people known to have been affected.

  5. Opsoclonus myoclonus syndrome - Wikipedia

    en.wikipedia.org/wiki/Opsoclonus_myoclonus_syndrome

    Opsoclonus myoclonus syndrome (OMS), also known as opsoclonus-myoclonus-ataxia (OMA), is a rare neurological disorder of unknown cause which appears to be the result of an autoimmune process involving the nervous system. It is an extremely rare condition, affecting as few as 1 in 10,000,000 people per year.

  6. Praxis Precision Medicines Announces Rare Pediatric Disease ...

    lite.aol.com/tech/story/0022/20241218/9320901.htm

    Rare pediatric diseases are defined by the FDA as serious or life-threatening conditions primarily affecting children under 18, with fewer than 200,000 cases in the U.S. A key benefit of obtaining a RPDD is the potential to receive a priority review voucher following FDA approval of a product with RPDD if the marketing application submitted for ...

  7. Alexander disease - Wikipedia

    en.wikipedia.org/wiki/Alexander_disease

    Alexander disease is a very rare autosomal dominant leukodystrophy, which are neurological conditions caused by anomalies in the myelin which protects nerve fibers in the brain. The most common type is the infantile form that usually begins during the first two years of life.

  8. Colorado family pushes for more funding around rare ...

    www.aol.com/colorado-family-pushes-more-funding...

    Spastic Paraplegia 50 is a neurodegenerative condition, which means it becomes harder for kids who get it to reach developmental milestones as they get older. One Littleton family shares their ...

  9. Bobble-head doll syndrome - Wikipedia

    en.wikipedia.org/wiki/Bobble-head_doll_syndrome

    Bobble-head doll syndrome is a rare neurological movement disorder in which patients, usually children around age 3, begin to bob their head and shoulders forward and back, or sometimes side-to-side, involuntarily, in a manner reminiscent of a bobblehead doll.