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The National Program of Cancer Registries is a USA-based program with state-based cancer registries that collect, analyze and report cancer cases and deaths to a central cancer registry. NPCR was established in 1992 and administered by the CDC.
SEER Cancer Statistics, Age-Specific SEER Incidence Rates, 2003-2007. The Surveillance, Epidemiology, and End Results (SEER) program of the National Cancer Institute (NCI) is a source of epidemiologic information on the incidence and survival rates of cancer in the United States. [1] [2]
The North American Association of Central Cancer Registries, Inc. is a professional organization that develops and promotes uniform data standards for cancer registration; provides education and training; certifies population-based registries; aggregates and publishes data from central cancer registries; and promotes the use of cancer surveillance data and systems for cancer control and ...
The AHIMA CRM Program helps enrollees qualify for the CTR certification exam. It is a web-based program which assists in gaining the following skills: Accurately abstract health information into a cancer registry to allow for uniform data collection; Manage an effective cancer registry program at a local, state or national level
The instrument closely resembles survey items and topics found on HINTS 5, Cycle 4 (2020), and includes other topics relevant to cancer survivors. A unique aspect of the dataset is that key data elements from the cancer registry datasets are linked to the survey responses, providing a more in-depth view of each respondent's cancer diagnosis.
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Health information privacy concerns have led to the restricted use of cancer registry data in the United States Department of Veterans Affairs [6] [7] [8] and other institutions. [9] The American Cancer Society predicts that approximately 1,690,000 new cancer cases will be diagnosed and 577,000 Americans will ultimately die of cancer in 2012. [10]