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  2. Childhood interstitial lung disease - Wikipedia

    en.wikipedia.org/wiki/Childhood_interstitial...

    Childhood interstitial lung disease, sometimes abbreviated as ChILD, is a family of rare chronic and complex disorders that affect the lungs of children. [1] In the lungs, these disorders affect the interstitium, which is the space around the alveoli. The alveoli are the air sacs of the lungs. [2]

  3. Pulmonary alveolar microlithiasis - Wikipedia

    en.wikipedia.org/wiki/Pulmonary_alveolar_micro...

    PAM is one of the rare lung diseases currently being studied by the Rare Lung Diseases Consortium. Pulmonary Alveolar Microlithiasis patients, families, and caregivers are encouraged to join the NIH Rare Lung Diseases Consortium Contact Registry. This is a privacy protected site that provides up-to-date information for individuals interested in ...

  4. Alveolar capillary dysplasia - Wikipedia

    en.wikipedia.org/wiki/Alveolar_capillary_dysplasia

    ACD is a rare disease. As of 2011, about 100 cases had been reported. It is likely an under-recognized cause of death shortly after birth because diagnosis requires microscopic examination of lung tissue or specialized genetic testing, or death can be attributed to severe heart or intestinal congenital abnormalities which frequently occur in ...

  5. Pfizer drug extends life for patients with rare lung cancer ...

    www.aol.com/news/pfizer-drug-extends-life...

    Pfizer’s lung cancer drug Lorbrena can extend life for patients with a rare form of the disease for years longer than other drugs, according to new research published Friday.

  6. Neuroendocrine hyperplasia - Wikipedia

    en.wikipedia.org/wiki/Neuroendocrine_hyperplasia

    Neuroendocrine hyperplasia is rare and poorly understood lung condition which is characterized by an abnormal growth of pulmonary neuroendocrine cells in the lungs. It is a non-progressive disease of the interstitial tissues of the lungs.

  7. Pulmonary alveolar proteinosis - Wikipedia

    en.wikipedia.org/wiki/Pulmonary_alveolar_proteinosis

    Pulmonary alveolar proteinosis (PAP) is a rare lung disorder characterized by an abnormal accumulation of surfactant-derived lipoprotein compounds within the alveoli of the lung. The accumulated substances interfere with the normal gas exchange and expansion of the lungs, ultimately leading to difficulty breathing and a predisposition to ...

  8. Rare Diseases Clinical Research Network - Wikipedia

    en.wikipedia.org/wiki/Rare_Diseases_Clinical...

    The following is a timeline of the Rare Diseases Clinical Research Network: As a result of the Rare Diseases Act of 2002, on February 27, 2003, the ORDR (in conjunction with the National Center for Research Resources (NCRR), the General Clinical Research Consortium (GCRC) Program, and other NIH Institutes) requested applications for a Rare Diseases Clinical Research Network.

  9. Birt–Hogg–Dubé syndrome - Wikipedia

    en.wikipedia.org/wiki/Birt–Hogg–Dubé_syndrome

    Birt-Hogg-Dubé Syndrome patients, families, and caregivers are encouraged to join the NIH Rare Lung Diseases Consortium Contact Registry. This is a privacy-protected site that provides up-to-date information for individuals interested in the latest scientific news, trials, and treatments related to rare lung diseases.

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