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What is the prognosis for postural orthostatic tachycardia syndrome (POTS)? The prognosis (outlook) for POTS is generally good, although it can severely disrupt daily living. POTS symptoms may come and go for years.
Ehlers-Danlos syndrome affects everyone differently. What you experience depends on which type of EDS you have and the severity of your symptoms. Ask your provider what to expect based on your unique situation. What is the life expectancy of someone with Ehlers-Danlos syndrome?
It can be congenital (meaning it’s something you have at birth), or you can develop it at any point in life. The average time of onset is between the ages of 50 and 60. Dysautonomia is often something that healthcare providers have limited experience with, though.
What is the prognosis for children with Pitt-Hopkins syndrome? Life expectancy for children with Pitt-Hopkins syndrome varies. Some children with PTHS live to adulthood. Ask your healthcare provider how you can help your child live a healthy life.
What is my life expectancy with Marfan syndrome? Because of medical advances (especially heart surgeries), life expectancy for people with Marfan syndrome started to rise in the late 1970s. In the past, the life expectancy was 32 years. Today, some people with Marfan syndrome can live past age 72.
It’s difficult for researchers to give a number related to life expectancy for someone with PAF. This is because the condition is rare, and there aren’t many long-term studies on it. One study reported the average survival rate to be 12.5 years after diagnosis.
Nutcracker syndrome refers to the phenomenon when it occurs with symptoms. In this case, the compression of your renal vein causes symptoms you notice, which may greatly disrupt your daily life. People with nutcracker syndrome may need treatment to help blood flow better through their renal veins.
Most people with Sjögren’s syndrome live their lives without experiencing severe complications. If you have secondary Sjögren’s syndrome, the condition that’s causing it might give you an increased risk of complications. Ask your provider what to expect.
What is my life expectancy if I have Alport syndrome? Males who have XLAS and anyone with ARAS often develop kidney failure and hearing loss before 30. Females who have XLAS usually have an average lifespan.
May-Thurner syndrome occurs when your right iliac artery compresses your left iliac vein. This compression disrupts blood flow and may lead to DVT. Many people have no symptoms of May-Thurner syndrome. Others experience pain, swelling or feelings of heaviness in their legs.