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Patients Know Best is a British social enterprise, [1] with an aim of putting patients in control of their own medical records. [2] In the UK, Patients Know Best integrates into the NHS app [ 3 ] and in the Netherlands, it integrates with the government's personal health records infrastructure persoonlijke gezondheidsomgeving (PGO) .
The major shortcoming of most patient portals is their linkage to a single health organization. If a patient uses more than one organization for healthcare, the patient typically needs to log on to each organization's portal to access information. This results in a fragmented view of individual patient data. [3]
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The term "personal health record" is not new. The term was used as early as June 1978, [2] and in 1956, there was a reference was made to a "personal health log." [3] The term "PHR" may be applied to both paper-based and computerized systems; [4] usage in the late 2010s usually implies an electronic application used to collect and store health data.
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