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The Dravet Syndrome Foundation was founded by parents with the purpose of expediting research to find a cure and better treatments for their afflicted children. [2] It was established in the state of Connecticut and was designated a tax-exempt public charity in the United States in September 2009 by the Internal Revenue Service under Section 501(c)3.
The Epilepsy Foundation received anecdotal reports of patients experiencing seizures and side effects after switching drugs, and tried to convince the U.S. Food and Drug Administration (FDA) in 1999 that there was a problem, but the FDA decided there was no evidence. In 2006, foundation leaders convened a committee of medical experts, and its ...
Epilepsy Outlook is a charity based in Hartlepool which provides free and confidential practical support, advice and information for people with epilepsy and their carers. [4] Their support services include supported volunteer placements, a drop-in centre, epilepsy awareness training, an art therapy group and welfare benefits advice. Each year ...
In fact, many non-profit organizations and other volunteer-led initiatives have found ways to bring do-gooders on board from a distance, which is excellent news considering that a recent survey ...
The National Association of Epilepsy Centers is an association of Comprehensive Epilepsy Centers - academic departments of epilepsy in the United States that meets certain criteria and has certain resources available for the care of the most complicated patients with epilepsy. [1] It is based in Washington DC.
Medical volunteering has in general been praised as “ethical imperative to serve the disadvantaged”. [16] Medical volunteers may have good intentions and aid beneficiaries may be grateful for their help. Yet, scholars have explored the significant drawbacks of such volunteerism. [17]
The American Epilepsy Society (AES) is a nationwide 501(c)(3) non-profit organization for medical professionals and scientific investigators dedicated to finding the prevention, treatment, and cure of epilepsy.
Epilepsy can have tremendous social issues for patients. Social acceptance from others is a common challenge. Though persons with epilepsy are otherwise just like anyone else, there are stigmas associated with epilepsy that can affect one's acceptance among others. Depression is common due to impaired social acceptance. [1]