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A data management plan or DMP is a formal document that outlines how data are to be handled both during a research project, and after the project is completed. [1] The goal of a data management plan is to consider the many aspects of data management, metadata generation, data preservation, and analysis before the project begins; [2] this may lead to data being well-managed in the present ...
The Five Safes is a framework for helping make decisions about making effective use of data which is confidential or sensitive. It is mainly used to describe or design research access to statistical data held by government and health agencies, and by data archives such as the UK Data Service.
The Advanced Research Projects Agency for Health (ARPA-H) is an agency within the Department of Health and Human Services. [1] Its mission is to "make pivotal investments in break-through technologies and broadly applicable platforms, capabilities, resources, and solutions that have the potential to transform important areas of medicine and health for the benefit of all patients and that ...
In 2003, Borking, Blarkom and Olk reviewed the technologies from a data protection perspective in their Handbook of privacy enhancing technologies. [1] In 2007, Fritsch published an historic, taxonomic and practical overview of contemporary privacy-enhancing technology for the Internet for the research project PETWeb. [9]
In 1980, the OECD issued recommendations for protection of personal data in the form of eight principles. These were non-binding and in 1995, the European Union (EU) enacted a more binding form of governance, i.e. legislation, to protect personal data privacy in the form of the Data Protection Directive.
As such, the data subject must also be provided with contact details for the data controller and their designated data protection officer, where applicable. [27] [28] Data protection impact assessments (Article 35) have to be conducted when specific risks occur to the rights and freedoms of data subjects. Risk assessment and mitigation is ...
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The European Directive on Data Protection that went into effect in October 1998, includes, for example, the requirement to create government data protection agencies, registration of databases with those agencies, and in some instances prior approval before personal data processing may begin. In order to bridge these different privacy ...