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In November 2007, a video of a 35-year-old Indonesian man named Dede Koswara with a similar disease appeared on the Internet. [16] His story appeared on the U.S. Discovery Channel and TLC series My Shocking Story (Extraordinary People on UK's Five) in the episode "Half Man Half Tree". [17]
Dede Koswara (1971 – January 30, 2016), also known as the "Tree Man", was an Indonesian carpenter with epidermodysplasia verruciformis (EV), a rare disease that causes the human papillomavirus (HPV) to grow uncontrollably, leading to the development of warts resembling tree bark. For most of his life, he was shunned for having an unknown disease.
This man suffered from a rare genetic disorder that made bark-like warts grow on his skin for more than two decades. ... "Tree man" syndrome is so rare that only 200 cases have been reported globally.
Educating yourself about rare diseases can help spread the word and empathy.
Sporotrichosis, also known as rose handler's disease, [2] is a fungal infection that may be localised to skin, lungs, bone and joint, or become systemic. [2] [4] It presents with firm painless nodules that later ulcerate. [3] Following initial exposure to Sporothrix schenckii, the disease typically progresses over a period of a week to several ...
Rare diseases affect between 20 and 30 million Americans each year, and around 350 million people all over the world. Any disease that impacts 200,000 people or less in the U.S. is classified as a ...
Fatal insomnia is an extremely rare neurodegenerative prion disease that results in trouble sleeping as its hallmark symptom. [2] The majority of cases are familial (fatal familial insomnia [FFI]), stemming from a mutation in the PRNP gene, with the remainder of cases occurring sporadically (sporadic fatal insomnia [sFI]).
Fortunately, Bayliscacaris infection in humans is extremely rare. As the CDC noted in a September 9 report on seven cases (none fatal) detected between 2013 and 2015, the United States saw just 22 ...