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The Ehlers–Danlos National Foundation (EDNF) was originally founded in 1985 by Nancy Rogowski. In 2013, they donated money to help fund the opening of a research center in Baltimore. [10] On May 1, 2016, the EDNF became The Ehlers–Danlos Society, a global organization. [11]
[4] [1] From 2001 to 2005 she was Chief of the Human Genetics and Integrative Medicine Section in the Laboratory of Genetics, National Institute on Aging. [1] While at NIH, she launched a natural history study of Ehlers–Danlos syndromes that lasted for more than two decades. [1] She also worked on the Human Genome Project. [5]
Ehlers–Danlos syndromes (EDS) are a group of 13 genetic connective-tissue disorders. [7] Symptoms often include loose joints, joint pain, stretchy velvety skin, and abnormal scar formation. [ 1 ] These may be noticed at birth or in early childhood. [ 3 ]
Henri-Alexandre Danlos (/ ˈ d æ n l ɒ s /, French pronunciation: [ɑ̃ʁi alɛksɑ̃dʁ(ə) dɑ̃los]; 26 March 1844 – 12 September 1912) was a French physician and dermatologist born in Paris. With Danish dermatologist Edvard Ehlers (1863-1937), the Ehlers–Danlos syndromes , which comprise a group of inherited connective-tissue ...
Edvard Ehlers. Edvard Laurits Ehlers (/ ˈ eɪ l ər z /, Danish pronunciation: [ˈe̝ðvɑːt ˈlɑwˀʁe̝ts ˈeːlɐs]; 26 March 1863 in Copenhagen – 7 May 1937) was a Danish dermatologist whose name was given to a group of rare genetic connective tissue disorders, known collectively as the Ehlers–Danlos syndromes (EDS), which were named, together after Henri-Alexandre Danlos from ...
Ehlers-Danlos syndrome is a genetic disorder in humans and animals which can cause connective tissue disorders, hyper mobility, bruising, and a range of other issues. In cats it cause limb ...
Ehlers–Danlos syndrome - diverse collection of disorders distinguished by the fragility of soft connective tissues and widespread symptoms affecting the skin, ligaments, joints, blood vessels, and internal organs. [5] Osteogenesis imperfecta - hereditary condition marked by reduced bone mass, weakened bones, increased brittleness, and short ...
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