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Sep. 15—A regional fundraiser is scheduled with Team Hope volunteers pledging to walk Sept. 25 to benefit Huntington's Disease Society of America. People can register or donate online at hdsa ...
The Society comprises 50+ volunteer-led local chapters and affiliates across the country with its headquarters in New York City. Additionally, HDSA hosts more than 200 support groups for people with HD, their families, caregivers and people at-risk, and is a resource on Huntington's Disease for medical professionals and the general public. [1]
It has worked to establish and support a network of multidisciplinary clinics for HD patients in the UK. [ 3 ] The charity was instrumental in the 2010 launch of an All-Party Parliamentary Group for Huntington's disease in the UK Parliament , chaired by Lord Walton of Detchant , and 2010 research revealing that the prevalence of HD is much ...
The Huntington's disease Outreach Project for Education at Stanford (HOPES) is a student-run project at Stanford University dedicated to making scientific information about Huntington's disease (HD) more readily accessible to patients and the public.
Huntington's disease (HD), also known as Huntington's chorea, is an incurable neurodegenerative disease [7] that is mostly inherited. [8] The earliest symptoms are often subtle problems with mood or mental/psychiatric abilities. [9] [1] A general lack of coordination and an unsteady gait often follow. [2]
Healthcare reform advocacy groups in the United States are non-profit organizations in the US who have as one of their primary goals healthcare reform in the United States. These notable organizations address issues such as universal healthcare , national health insurance , and single-payer healthcare .
In 2011, with financial support from the national Huntington's disease lay organizations of the US, [22] Canada, [23] England & Wales, [24] Scotland [25] and Germany, [26] Carroll and Wild co-founded HDBuzz, an online source of accessible news about Huntington's disease research, written by scientists.
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