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Biobanks can give researchers access to data representing a large number of people. Samples in biobanks and the data derived from those samples can often be used by multiple researchers for cross purpose research studies. For example, many diseases are associated with single-nucleotide polymorphisms.
Also biobanks, which do specimen storage, cannot take full responsibility for specimen integrity, because before they take custody of samples someone must collect and process them and effects such as RNA degradation are more likely to occur from delayed sample processing than inadequate storage.
DDBJ (Japan), GenBank (USA) and European Nucleotide Archive (Europe) are repositories for nucleotide sequence data from all organisms. All three accept nucleotide sequence submissions, and then exchange new and updated data on a daily basis to achieve optimal synchronisation between them.
The National Institute of Neurological Disorders and Stroke (NINDS) Human Cell and Data Repository maintains a collection of cell lines to advance the study of neurological disorders. [ 7 ] [ 8 ] The National Institute on Aging (NIA) Aging Cell Repository facilitates research into the mechanisms of aging by providing cell lines collected from ...
to share – to copy, distribute and transmit the work; to remix – to adapt the work; Under the following conditions: attribution – You must give appropriate credit, provide a link to the license, and indicate if changes were made. You may do so in any reasonable manner, but not in any way that suggests the licensor endorses you or your use.
A biobank is a physical place which stores biological specimens.In some cases, participant data is also collected and stored. Access policies details may vary across biobanks but generally involve obtaining ethics approval from institutional review boards (IRB) and scientific review or peer review approval from the institutions under which the biobanks operate as well as Ethics approval from ...
The Confederation of Open Access Repositories (COAR) states in its manifesto that "Each individual repository is of limited value for research: the real power of Open Access lies in the possibility of connecting and tying together repositories, which is why we need interoperability. In order to create a seamless layer of content through ...
Among the concerns which participants in biobanks have expressed are giving personal information to researchers and having data used against them somehow. [ 9 ] Scientists have demonstrated that in many cases where participants' names were removed from data, the data still contained enough information to make identification of the participants ...
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