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The Foundation was established in 1955 by a group of volunteers in Philadelphia, Pennsylvania.. In addition to providing grants for research into cystic fibrosis and supporting clinical trials, the foundation promotes and accredits 115 specialized centers for treatment of individuals with cystic fibrosis.
Cystic Fibrosis Australia (CFA), [1] an Australian national organization aimed at raising awareness and education of cystic fibrosis through advocacy and research Cystic Fibrosis Community Care (CF Community Care), [2] the largest Australian state-based organization dedicated to raising awareness of CF, providing support services and advocacy to people with CF and funding research into CF.
Deford served as chairman of the Cystic Fibrosis Foundation from 1982 until 1999 and was chairman emeritus after that. He became a cystic-fibrosis advocate after his daughter Alexandra was diagnosed with the illness in 1972. After she died at age 8 on January 19, 1980, he chronicled her life in the memoir Alex: The Life of a Child.
Claire Lucia Wineland (April 10, 1997 – September 2, 2018) was an American activist, author, speaker and social media personality. [2] [3] Through her non-profit organization, Claire's Place Foundation, she provided support to children and families affected by cystic fibrosis (CF).
Emily's Entourage is a nonprofit organization that raises money and awareness to help find a cure for rare ("nonsense") mutations of cystic fibrosis (CF), a genetic disorder that generally affects a person's lungs and digestive system. The foundation has raised over $1 million, largely from viral fundraising through universities and video ...
Travis Michael Flores (April 7, 1991 – May 23, 2024) [1] was an American writer, activist, philanthropist, and motivational speaker, best known for being an advocate of cystic fibrosis and queer youth. He was a published children's book author and wrote for several magazines and publications, including OUT, UpWorthy, and DoSomething.
The Fight Forever Foundation is a 501(c)(3) non-profit foundation founded to find a cure for cystic fibrosis (CF), a life-threatening, genetic lung disease affecting 100,000 people worldwide. This objective is expressed in both Danny's personal mission and the shared mission of the Foundation, "Find a Cure or Die Trying."
Cystic Fibrosis Canada's mandate is to help individuals with cystic fibrosis, principally by funding cystic fibrosis research and care. The organization also provides educational materials for the cystic fibrosis community and the general public; undertakes advocacy initiatives with, and on behalf of Canadians with cystic fibrosis, and raises ...
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