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Specialist children's palliative care, respite care, emergency, and terminal care (this may be at the hospice or within the child's home) Bereavement counselling and support, typically offered as individual home support, as well as groups and work with brothers or sisters; Information, advice and practical assistance; 24-hour telephone support
Bereavement groups are typically one of the most common services offered to bereaved individuals, [1] [2] encompassing both formalized group therapy settings for reducing clinical levels of grief as well as support groups that offer support, information, and exchange between those who have experienced loss.
Grief counseling is commonly recommended for individuals who experience difficulties dealing with a personally significant loss. Grief counseling facilitates expression of emotion and thought about the loss, including their feeling sad, anxious, angry, lonely, guilty, relieved, isolated, confused etc.
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Family support is the support of families with a member with a disability, which may include a child, an adult, or even the parent in the family.In the United States, family support includes "unpaid" or "informal" support by neighbors, families, and friends, "paid services" through specialist agencies providing an array of services termed "family support services", school or parent services ...
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Some states contract services out (privatize) and maintain a skeleton state government staff. Being a good advocate or self advocate is necessary to maximize services and supports but several advocacy groups have emerged that provide services, especially health advocacy, for disabled people such as Disability Health Support Australia. [7]
The lack of societal recognition or support for parents mourning a stillbirth is referred to as disenfranchised grief. Many parents feel isolated, as their identity as parents is often not acknowledged by healthcare providers, family, or society. They face the painful reality of being parents without a living child.
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