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Individuals have the broad right to access their health-related information, including medical records, notes, images, lab results, and insurance and billing information. [47] Explicitly excluded are the private psychotherapy notes of a provider, and information gathered by a provider to defend against a lawsuit. [48]
The financial industry has been particularly adept at using the Internet to grant individual users access to personal information. Possibly because of the strictness of HIPAA regulations, or the lack of financial incentives for the health care providers, the adoption of patient portals has lagged behind other market segments.
In 2019, the US Department of Health and Human Services Office for Civil Rights (OCA) promised to enforce patients’ right to access under HIPAA, using the Right of Access Initiative. There have currently already been two settlements with the OCA under the Right of Access Initiative, after companies failed to give patient medical records. [23]
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It has also led to social and ethical issues because basic human rights are considered to be violated by the PCMS, since hospitals and health information services are now more likely to share information with third-party companies. [1] Thus, there needs to be a reformation to specify which hospital personnel have the access to medical records.
A personal health record (PHR) is a health record where health data and other information related to the care of a patient is maintained by the patient. [1] This stands in contrast to the more widely used electronic medical record, which is operated by institutions (such as hospitals) and contains data entered by clinicians (such as billing data) to support insurance claims.
The Internet is widely used by the general public as a tool for finding health information. [1] In the late 1990s, researchers noted an increase in Internet users' access to health-related content despite the variation in the quality of information, level of accessibility, and overall health literacy. [2]