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The Boomer Esiason Foundation (BEF) was formed soon after Gunnar's diagnosis to fund research to find a cure for cystic fibrosis. The foundation also provides scholarships, transplant grants, hospital grants, and education and awareness of CF to help provide a higher quality of life for people with CF.
The Foundation was established in 1955 by a group of volunteers in Philadelphia, Pennsylvania.. In addition to providing grants for research into cystic fibrosis and supporting clinical trials, the foundation promotes and accredits 115 specialized centers for treatment of individuals with cystic fibrosis.
Deford served as chairman of the Cystic Fibrosis Foundation from 1982 until 1999 and was chairman emeritus after that. He became a cystic-fibrosis advocate after his daughter Alexandra was diagnosed with the illness in 1972. After she died at age 8 on January 19, 1980, he chronicled her life in the memoir Alex: The Life of a Child.
Travis Michael Flores (April 7, 1991 – May 23, 2024) [1] was an American writer, activist, philanthropist, and motivational speaker, best known for being an advocate of cystic fibrosis and queer youth. He was a published children's book author and wrote for several magazines and publications, including OUT, UpWorthy, and DoSomething.
Dorothy Hansine Andersen (May 15, 1901 – March 3, 1963) was the American physician and researcher who first identified and named cystic fibrosis.During her almost thirty year tenure at Babies Hospital of Columbia-Presbyterian Medical Center (now Morgan Stanley Children's Hospital), Andersen not only identified CF and its inheritance through a recessive gene, she was also at the forefront of ...
Cystic Fibrosis Australia (CFA), [1] an Australian national organization aimed at raising awareness and education of cystic fibrosis through advocacy and research Cystic Fibrosis Community Care (CF Community Care), [2] the largest Australian state-based organization dedicated to raising awareness of CF, providing support services and advocacy to people with CF and funding research into CF.
In 2018, Benson launched the Julian Benson CF Foundation, an organisation fighting to help those with cystic fibrosis. [10] On 8 December 2018, the foundation had a charity ball in order to raise funds. It was hosted by Eoghan McDermott and attended by a number of Irish celebrities. [11] [12] Benson is a fluent Irish language speaker. Benson is ...
In childhood, Flanagan was diagnosed with cystic fibrosis. His sister, Patricia, died at age 21 of the same illness, which also claimed the life of his second sister, who died soon after birth. At age 14, in 1967, Flanagan was named the first poster child for the North Orange County chapter of the National Cystic Fibrosis Research Foundation. [1]