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Usually, POTS patients are prescribed 0.1-0.2 mg of fludrocortisone daily. The dose should never exceed 0.4 mg orally each day as adrenal suppression may occur (Grubb, Kanjwal & Kosinski, 2006). Ivabradine, a sinus node blocker, has reportedly helped some POTS patients experience less symptoms. Ivabradine is sometimes used as an alternative to ...
I was prescribed a low dose of fludrocortisone yesterday, and was wondering how other people had found it. I have POTS with definite hyper-POTS tendencies and occasional BP spikes. Did you find it helpful to your symptoms? Did you get any of the side effects like weight gain in icky places, worse tachycardia, low potassium or worse sweating ...
I am keeping my fludrocortisone in the fridge now but it is a disaster for remembering to take them each morning. All of my pills are in a daily pill box with 4 compartments, at bedtime I put it next to my alarm clock with a glass of water so that I can take my tablets before getting out of bed (then put the rest of the day's pills into my hand ...
I'm so sorry you are having such a hard time. I remember when I first started taking fludrocortisone, it didn't really help because I was not drinking enough water and taking in enough salt. It doesn't work without all three components. I'm on 0.2mg now and it made a significant difference, but we are all different. I hope you feel better soon..
Hi all, please fill the fludrocortisone section if and only if you took it for more than a month. Thank you!
It doesn't help my daughters' energy, but it does keep them from passing out! Sounds like that's what was happening to your daughter. Pre-syncopal episode. My youngest daughter recently just stopped her fludrocortisone, as her bp was plenty high enough and the med was making it too high.
I have just started 600mg Northera 3x daily combined with 1 fludrocortisone and 10 mg midrodrine in morning, plus 1/2 fludrocortisone and 7.5 mg midrodine at lunch and 3 midodrine at dinner.
Hi,I'm on holiday finally and it's hot and my bp keeps dropping to 100/58 say - which is really low for me and making me dizzy.I only take half a tablet of Fludrocortisone and wondered if you can take the two drugs together.
I know many POTSies take florinef (fludrocortisone) on a daily basis. My PCP is blaming the sporadic use of fludrocortisone over the past 10 years on my lowered bone density. Are any of the POTS/dysautonomia clinics/doctors seeing an increase of osteoporosis in people who are not going through menopause? I'm still in my child bearing years.
I have been taking florinef for almost 4 weeks now. Recently, my endocrine specialist asked me to stop taking florinef, since all the endocrine tests came negative (although I dont think I was tested for aldesterone since I was on florinef since the POTS diagnoses last month); The doc mentioned t...