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Scioderm, acquired by Amicus Therapeutics in 2015, was a rare disease company focused on developing a treatment for Epidermolysis Bullosa (EB), a rare genetic disease characterized by extremely fragile skin and recurrent blister formation. There are currently no approved therapies for EB.
20-Year-Old with 'Butterfly' Skin Disease Is Striving for Independence: 'You Just Gotta Power Through' (Exclusive) Vanessa Etienne September 16, 2024 at 12:58 PM
Epidermolysis bullosa dystrophica or dystrophic EB (DEB) is an inherited disease affecting the skin and other organs. [1] [2] "Butterfly child" is the colloquial name for children born with the disease, as their skin is seen to be as delicate and fragile as the wings of a butterfly. [3]
Epidermolysis bullosa simplex (EBS) is a form of EB that causes blisters at the site of rubbing. It typically affects the hands and feet, and is typically inherited in an autosomal dominant manner, affecting the keratin genes KRT5 and KRT14.
Star-Studded Rock4EB! Concert Raises Over $1 Million for 'Butterfly' Skin Disease Epidermolysis Bullosa. Vanessa Etienne. September 23, 2024 at 1:26 PM.
Image credits: Irish Life Dublin Marathon Oscar-nominated actor Colin Farrell finished the final 4 kilometers (2.5 miles) of the Irish Life Dublin Marathon while pushing his old friend Emma ...
Junonia coenia, known as the common buckeye or buckeye, is a butterfly in the family Nymphalidae.Its range covers much of North America and some of Central America, including most of the eastern half of the US, the lower to middle Midwest, the Southwest (including most of California), southern Canada, and Mexico.
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