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Epilepsy Action provides freephone and email helplines and a wide range of information booklets, web pages and e-learning courses. It has around 100 local support groups across England , Wales and Northern Ireland and a network of volunteers working in the community.
Epilepsy can affect employment for a variety of reasons. Many employers are reluctant to hire a person they know has epilepsy, even if the seizures are controlled by medication. If the employee has a seizure while at work, they could harm themselves (but rarely others, contrary to popular belief) depending on the nature of the work.
Epilepsy Outlook is a charity based in Hartlepool which provides free and confidential practical support, advice and information for people with epilepsy and their carers. [4] Their support services include supported volunteer placements, a drop-in centre, epilepsy awareness training, an art therapy group and welfare benefits advice.
An epileptologist is a neurologist who specializes in the treatment of epilepsy. [1] Epileptologists are experts in epileptic seizures and seizure disorders, anticonvulsants, and special situations involving seizures, such as cases in which all treatment intended to stop seizures has failed and epilepsy (especially poorly controlled epilepsy) in pregnant women.
Research into the causes, diagnosis and treatment of epilepsy. Research focuses on brain imaging and genetics. [2] Epilepsy information, a national helpline and awareness raising programmes. [3] Campaigning on issues to help all people affected by epilepsy live as full a life as possible [4] Epilepsy training to external organisations. [5] [6]
The new mission of the Foundation is "To Lead The Fight To Overcome The Challenges Of Living With Epilepsy And To Accelerate Therapies To Stop Seizures, Find Cures, And Save Lives." [3] Programs included educational, counseling, referral, and employment assistance. In addition the EFA has advisory and youth programs, training grants and programs.
Tonic–clonic seizures are the seizure type most commonly associated with epilepsy and seizures in general and the most common seizure associated with metabolic imbalances. [2] It is a misconception that they are the sole type of seizure, as they are the main seizure type in approximately 10% of those with epilepsy.
[12] [13] Generalized seizures have been broadly classified into two categories: motor and non-motor. [8] A generalized tonic-clonic seizure (GTCS), also known as a grand mal seizure, is a whole-body seizure that has a tonic phase followed by clonic muscle retrenchments. [14] [15] GTCSs can happen in people of all ages. [15]