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Cystic Fibrosis Canada's mandate is to help individuals with cystic fibrosis, principally by funding cystic fibrosis research and care. The organization also provides educational materials for the cystic fibrosis community and the general public; undertakes advocacy initiatives with, and on behalf of Canadians with cystic fibrosis, and raises ...
The Crohn's and Colitis Foundation of Canada; Cystic Fibrosis Foundation; D. ... (formerly Free the Children) ... List of foundations in Canada; List of water-related ...
Shinerama is Canada's largest post-secondary fundraiser involving students at almost 60 university and college campuses across Canada, aimed at raising money for cystic fibrosis research. Shinerama was developed in 1961 at Waterloo Lutheran University (now Wilfrid Laurier University ) by Paul Enns as a way for first-year students to get ...
Cystic fibrosis is an autosomal recessive genetic disorder of the CFTR protein which reduces chloride and sodium ion transport through the cell membrane, causing thicker than normal mucus secretions. [ 13 ] [ 14 ] The CFTR protein is found in epithelial cells of the lung, liver, pancreas, digestive tract, and reproductive tracts.
Cystic Fibrosis Australia (CFA), [1] an Australian national organization aimed at raising awareness and education of cystic fibrosis through advocacy and research Cystic Fibrosis Community Care (CF Community Care), [2] the largest Australian state-based organization dedicated to raising awareness of CF, providing support services and advocacy to people with CF and funding research into CF.
Drug Manufacturer Indication Tezacaftor/ivacaftor [1] Vertex Pharmaceuticals: cystic fibrosis: Durvalumab [1] AstraZeneca UK: unresectable Stage III non-small cell lung cancer: Ibalizumab [1] Theratechnologies: human immunodeficiency virus type 1 (HIV-1) infection Brentuximab vedotin [1] Seattle Genetics: Hodgkin lymphoma: Ipilimumab [1 ...
Karyn Hascal, The Healing Place’s president and CEO, said she would never allow Suboxone in her treatment program because her 12-step curriculum is “a drug-free model. There’s kind of a conflict between drug-free and Suboxone.” For policymakers, denying addicts the best scientifically proven treatment carries no political cost.
The latest FDA approved drug is Trikafta, which was passed by the FDA in 54 days and is able to help up to 90% of CF patients. [8] In 2014, the Cystic Fibrosis Foundation sold the rights to the royalties of the drugs for $3.3 billion, twenty times the Foundation's 2013 budget. [9] [10]
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