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Genetic privacy concerns also arise in the context of criminal law because the government can sometimes overcome criminal suspects' genetic privacy interests and obtain their DNA sample. [5] Due to the shared nature of genetic information between family members, this raises privacy concerns of relatives as well. [6]
The idea of a private company owning public DNA data has raised concerns, with an Irish Times editorial stating: "To date, Ireland seems to have adopted an entirely commercial approach to genomic medicine. This approach places at risk the free availability of genomic data for scientific research that could benefit patients."
Particularly, concerns voice how this process will involve multiparty engagement and access to data. [1] The distinction between genetic sequencing for medicine and research purposes is a contentious one, and furthermore, anytime healthcare is involved in a discussion, the dimension of patient privacy must be considered, as it may conflict or ...
Story at a glance Genetic data has been important for making medical breakthroughs. Human genomic data usage has privacy and ownership issues. Genome researchers suggest that blockchain technology ...
[with] genetic genealogy and public-records databases." [42] This has led to calls for policy-makers to establish consistent guidelines and best practices for the accessibility and usage of individual genomic data collected by researchers. [43] There is also controversy regarding the concerns with companies testing individual DNA.
This is due to concerns about the potential misuse of genetic data and privacy violations. While health-related genetic testing is allowed within a medical context, tests for non-medical purposes, such as ancestry or personal traits, also face legal restrictions, particularly regarding consumer access.
Nebula Genomics says that it is developing its own blockchain to enforce security and privacy but, despite that, re-identification of people starting from the genetic data could still be possible (DNA itself is a unique identifier), law enforcement could still issue search warrants or subpoena the data, and difficulties related to encrypting ...
The 23andMe data leak was a data breach at personal genomics company 23andMe reported in October 2023. The cyberattack gathered profile and ethnicity information from millions of users. The affected customers were reported as primarily Ashkenazi Jews but also including hundreds of thousands of ethnically Chinese users. [ 1 ]