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The Society comprises 50+ volunteer-led local chapters and affiliates across the country with its headquarters in New York City. Additionally, HDSA hosts more than 200 support groups for people with HD, their families, caregivers and people at-risk, and is a resource on Huntington's Disease for medical professionals and the general public. [1]
It supports a network of regional care advisors who offer care and support to people with and at risk of Huntington's disease and their families. The HDA also has a research programme that supports scientific and social research into HD. [2] It has worked to establish and support a network of multidisciplinary clinics for HD patients in the UK. [3]
The charity was established in 1989 by families for families living with Huntington's disease and its chief executive is Alistair Haw. [1] It works with the NHS and other agencies to co-ordinate a national plan for delivery of services to Huntington's patients and their families. [4] It is also a member of the Neurological Alliance of Scotland. [5]
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