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The Huntington Society of Canada (HSC) (French: Société Huntington du Canada, SHC) is a non-profit organisation that supports people in Canada affected by the genetic neurodegenerative brain condition Huntington's disease (HD). The HSC was founded in 1973 and is based in Waterloo, Ontario. [1]
It supports a network of regional care advisors who offer care and support to people with and at risk of Huntington's disease and their families. The HDA also has a research programme that supports scientific and social research into HD. [2] It has worked to establish and support a network of multidisciplinary clinics for HD patients in the UK. [3]
The Society comprises 50+ volunteer-led local chapters and affiliates across the country with its headquarters in New York City. Additionally, HDSA hosts more than 200 support groups for people with HD, their families, caregivers and people at-risk, and is a resource on Huntington's Disease for medical professionals and the general public. [1]
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The CHDI Foundation, Inc., is a United States–based non-profit biomedical foundation that aims to "rapidly discover and develop drugs that delay or slow the progression of Huntington's disease", [4] a neurodegenerative genetic disorder that affects muscle coordination and leads to cognitive decline.
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