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In 1998, two of Crowley's children, Megan and Patrick, were diagnosed with a severe neuromuscular disorder glycogen storage disease type II, also called Pompe disease. In the face of the children's deteriorating health, the family moved to Princeton, New Jersey to be close to doctors specializing in the disease.
John Crowley and his wife Aileen are a Portland couple with two of their three children suffering from Pompe disease, a genetic anomaly that typically kills most children before their tenth birthdays. John, an advertising executive, contacts Robert Stonehill, a researcher in Nebraska who has done innovative research for an enzyme treatment for ...
In 1998, two of Biotech executive John Crowley's children, Megan and Patrick, were diagnosed with a severe neuromuscular disorder, glycogen storage disease type II, also called Pompe's disease. In the face of the children's deteriorating health, the family moved to Princeton, New Jersey, to be close to doctors specializing in the disease. [26]
William Canfield is a glycobiologist, chief scientific officer and founder of an Oklahoma City-based biotechnology company, Novazyme, which was acquired by Genzyme in August 2001 and developed, among other things, an enzyme that can stabilize (but not cure) Pompe disease, based on Canfield's ongoing research since 1998.
Funding for research in this field was in part provided by the Muscular Dystrophy Association and the Acid Maltase Deficiency Association in the US and by the Association of Glycogen Storage Disease in the UK, as well as the International Pompe Association. John Crowley became involved in the fund-raising efforts in 1998 after two of his ...
Patrolman Crowley passed away recently, on August 22, as a result of injuries sustained 37 years earlier. He was severely injured in September 1987 when the squad car he was in was struck by a ...
The BBC’s iconic 1995 TV adaptation of Jane Austen’s Pride and Prejudice reportedly cost roughly £1 million per episode (about $9.6 million) to make. And it shows. The attention to period ...
The house was first built and owned by Sir Thomas Foster whose descendant sold it to the Crowley family. Robert Chester, a director of the South Sea Company bought it in 1706 who made many substantial changes to the house and grounds, commissioning Charles Bridgeman to work on the gardens.