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A data library, data archive, or data repository is a collection of numeric and/or geospatial data sets for secondary use in research. A data library is normally part of a larger institution (academic, corporate, scientific, medical, governmental, etc.). established for research data archiving and to serve the data users of that organisation.
A Clinical Data Repository (CDR) or Clinical Data Warehouse (CDW) is a real time database that consolidates data from a variety of clinical sources to present a unified view of a single patient. It is optimized to allow clinicians to retrieve data for a single patient rather than to identify a population of patients with common characteristics ...
The main academic full-text databases are open archives or link-resolution services, although others operate under different models such as mirroring or hybrid publishers. . Such services typically provide access to full text and full-text search, but also metadata about items for which no full text is availa
re3data.org is a global registry of research data repositories from all academic disciplines. It provides an overview of existing research data repositories in order to help researchers to identify a suitable repository for their data and thus comply with requirements set out in data policies. [1] [2] The registry went live in autumn 2012. [3]
XDS uses structured EHR standards such as Continuity of Care Record (CCR) and Clinical Data Architecture (CDA) to facilitate data exchange. [2] The registry stores metadata about each document stored in a repository, including its source or location. [3] There may be multiple repositories of documents indexed, [4] but only one registry per ...
The data management plan describes the activities to be conducted in the course of processing data. Key topics to cover include the SOPs to be followed, the clinical data management system (CDMS) to be used, description of data sources, data handling processes, data transfer formats and process, and quality control procedure
Dryad is an international open-access repository of research data, especially data underlying scientific and medical publications (mainly of evolutionary, genetic, and ecology biology). Dryad is a curated general-purpose repository that makes data discoverable, freely reusable, and citable.
NDAR has established a data dictionary with over 300 clinical, imaging, and genomic research definitions which were created in close collaboration with the ASD research community. To submit data to NDAR, researchers are required to format their data in accord with an existing data definition or define new data definition which will be available ...