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Harold Kushner, who among other things wrote the book When Bad Things Happen to Good People, had a son, Aaron, who died at the age of 14 in 1977 of progeria. [81] Margaret Casey, a 29-year-old woman with progeria who was then believed to be the oldest survivor of the premature aging disease, died on Sunday, May 26, 1985.
Huntington's disease is an autosomal dominant disorder, inherited from Carol Carr's husband, Hoyt Scott. Hoyt, a factory worker, had lost a sister to the disease as well as a brother, who committed suicide after being diagnosed. Hoyt's condition deteriorated and he died unable to move, swallow, or speak in 1995.
Leon Botha (4 June 1985 – 5 June 2011) was a South African painter and disk jockey. He was known for his close association with the hip hop group Die Antwoord, as well as for being the second of the world's longest-lived persons with progeria before Sammy Basso who was one of the oldest survivors of the disease.
The world's oldest real-life "Benjamin Button" is barely older than a teenager, but he has the body of a 160-year-old. Rupesh Kumar, 21, lives in India and weighs under 45 pounds, Express reports .
Sammy Basso (1 December 1995 – 5 October 2024) was an Italian biologist, patient of progeria and one of the oldest known survivors of the disease. Basso also took part in clinical trials for which he carried out research.
Huntington's disease (HD), also known as Huntington's chorea, is an incurable neurodegenerative disease [7] that is mostly inherited. [8] The earliest symptoms are often subtle problems with mood or mental/psychiatric abilities. [9] [1] A general lack of coordination and an unsteady gait often follow. [2]
Former journalist Charles Sabine received an OBE from the Princess Royal on Wednesday for his work raising awareness about Huntington’s disease.
Hayley Leanne Okines (3 December 1997 – 2 April 2015) was an English author and activist who was a sufferer of the extremely rare aging disease progeria. [3] [4] She was known for spreading awareness of the condition.
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