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The use of Clinical Data Repositories could provide a wealth of knowledge about patients, their medical conditions, and their outcome. The database could serve as a way to study the relationship and potential patterns between disease progression and management. The term "Medical Data Mining" has been coined for this method of research.
Research data archiving is the long-term storage of scholarly research data, including the natural sciences, social sciences, and life sciences.The various academic journals have differing policies regarding how much of their data and methods researchers are required to store in a public archive, and what is actually archived varies widely between different disciplines.
Clinical data management (CDM) is a critical process in clinical research, which leads to generation of high-quality, reliable, and statistically sound data from clinical trials. [1] Clinical data management ensures collection, integration and availability of data at appropriate quality and cost.
As a one-stop-shop for storing all the information related to the institutional research activity, CRIS systems play a key role in the area of research administration by institutional Research Offices. Among many others, this involves aspects such as: Research impact and its analysis; Research collaborations across institutions and with Industry
re3data.org is a global registry of research data repositories from all academic disciplines. It provides an overview of existing research data repositories in order to help researchers to identify a suitable repository for their data and thus comply with requirements set out in data policies. [1] [2] The registry went live in autumn 2012. [3]
The patient health record is the primary legal record documenting the health care services provided to a person in any aspect of the health care system. The term includes routine clinical or office records, records of care in any health related setting, preventive care, lifestyle evaluation, research protocols and various clinical databases.
Data sharing is the practice of making data used for scholarly research available to other investigators. Many funding agencies, institutions, and publication venues have policies regarding data sharing because transparency and openness are considered by many to be part of the scientific method .
The portal for medical data models is a German [1] and European [2] medical research infrastructure. It is an open-access metadata-repository initiated for scientific purposes that can generate, analyse, release and reuse medical forms.