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The use of Clinical Data Repositories could provide a wealth of knowledge about patients, their medical conditions, and their outcome. The database could serve as a way to study the relationship and potential patterns between disease progression and management. The term "Medical Data Mining" has been coined for this method of research.
The main academic full-text databases are open archives or link-resolution services, although others operate under different models such as mirroring or hybrid publishers. Such services typically provide access to full text and full-text search, but also metadata about items for which no full text is available.
A data library, data archive, or data repository is a collection of numeric and/or geospatial data sets for secondary use in research. A data library is normally part of a larger institution (academic, corporate, scientific, medical, governmental, etc.). established for research data archiving and to serve the data users of that organisation.
Clinical data management (CDM) is a critical process in clinical research, which leads to generation of high-quality, reliable, and statistically sound data from clinical trials. [1] Clinical data management ensures collection, integration and availability of data at appropriate quality and cost.
The patient health record is the primary legal record documenting the health care services provided to a person in any aspect of the health care system. The term includes routine clinical or office records, records of care in any health related setting, preventive care, lifestyle evaluation, research protocols and various clinical databases.
Yes institutions have access to Web Services in order to feed data into internal databases; Web Services can be consumed as directed by institution. Pure currently ingests a range of data from institutions' own systems, including grants data, HR data, institutional repositories, publication databases, book listings and more.
Some of the problems tackled by CRI are: creation of data warehouses of health care data that can be used for research, support of data collection in clinical trials by the use of electronic data capture systems, streamlining ethical approvals and renewals (in US the responsible entity is the local institutional review board), maintenance of ...
Health data can be used to benefit individuals, public health, and medical research and development. [14] The uses of health data are classified as either primary or secondary. Primary use is when health data is used to deliver health care to the individual from whom it was collected. [15]