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Currently, Arizona's genetic privacy statutes focus on the need for informed consent to create, store, or release genetic testing results, [43] [44] but a pending bill would amend the state genetic privacy law framework to grant exclusive property rights in genetic information derived from genetic testing to all persons tested. [45]
The Executive Order also provided explicit genetic privacy regulations within the federal government. [3] The second piece of federal legislation to address the use of genetic information and discrimination in the United States was the Genetic Information Nondiscrimination Act (GINA) of 2008.
But in some cases state laws can be more detailed and stringent, while being in ordinance to the federal laws in place. [3] With focus to biobanks, state laws can restrict a laboratory's ability to reject a customer and can regulate what happened with data after a test. [3] Certain states have privacy laws that deal with genetic-specific ...
Because 23andMe is not a health care company, health privacy laws don't apply, raising questions about what the business might opt to do with its 15 million users' personal genetic data.
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The right to privacy is protected also by more than 600 laws in the states and by a dozen federal laws, like those protecting health and student information, also limiting electronic surveillance. [46] As of 2022 however, only five states had data privacy laws. [47]
Within the United States, genetic discrimination is an ever-evolving concept that remains prominent across different domains. Emerging technology such as direct-to-consumer genetic tests have allowed for broad genetic health information to be more accessible to the public but raises concerns about privacy.
Sometimes the very laws meant to enforce privacy can result in companies sharing it. Skip to main content. Sign in. Mail. 24/7 Help. For premium support please call: 800-290-4726 more ...