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The institute has raised and spent more than $100 million on research into effective treatments for ALS and practices open-source science. [19] After the discovery that the multiple sclerosis drug Gilenya might also be a treatment for ALS, the Institute enrolled 30 people in a Phase 2A clinical trial the drug in 2013, though it did not progress further.
The book tells the story of Pete Frates, a Boston College baseball player who was diagnosed with amyotrophic lateral sclerosis (ALS) in 2011, who helped launch the Ice Bucket Challenge viral sensation. The online craze went viral in 2014 and raised $225 million for ALS research, as celebrities, professional athletes and millions of people ...
Sean Forrester Scott (May 20, 1969 – February 9, 2009) was a self-educated disease activist and researcher, filmmaker, innovator, entrepreneur and until the time of his death, the president of the ALS Therapy Development Institute, the world's largest amyotrophic lateral sclerosis research center. [1]
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Augustine L. Nieto II (February 15, 1958 – February 22, 2023) [2] was the founder and chief executive of Life Fitness, as well as the chairman of Augie's Quest to Cure ALS, and the ALS Therapy Development Institute. He and his wife, Lynne, lived in Corona Del Mar, California, and had four children and eight grandchildren. [3]
I was diagnosed with familial ALS, or genetic ALS, in 2022. Also known as Lou Gehrig's disease, amyotrophic lateral sclerosis runs in my family.
'Tis the season -- for financial scams of all kinds, when hackers and thieves attempt to separate well-meaning, hard-working people from their money. See: IRS Offers Advice on How You Can Avoid ...