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In data governance groups, responsibilities for data management are increasingly divided between the business process owners and information technology (IT) departments. Two functional titles commonly used for these roles are data steward and data custodian .
A data steward may share some responsibilities with a data custodian, such as the awareness, accessibility, release, appropriate use, security and management of data. [1] A data steward would also participate in the development and implementation of data assets.
A data protection officer (DPO) ensures, in an independent manner, that an organization applies the laws protecting individuals' personal data. The designation, position and tasks of a DPO within an organization are described in Articles 37, 38 and 39 of the European Union (EU) General Data Protection Regulation (GDPR). [ 1 ]
Data from the PCEHR is to be predominantly used in patient healthcare, but other uses are possible, for policy, research, audit and public health purposes. The concern is that in the case of research, what is allowed goes beyond existing privacy legislation. [35] What are 'illegitimate' uses of health information?
The EU Representative is the Controller's or Processor's contact person vis-à-vis European privacy supervisors and data subjects, in all matters relating to processing, to ensure compliance with this GDPR. A natural (individual) or legal (corporation) person can play the role of an EU Representative. [1]:
The role requires an executive with an understanding of how data collection and usage, and the associated risks all factor into an organization's day-to-day business operations. [34] CPOs also need to be aware of a range of legal, regulatory, contractual, and other factors that impact an organization's privacy risk strategy.
They work with clinical, epidemiological, demographic, financial, reference, and coded healthcare data. Health information administrators have been described to "play a critical role in the delivery of healthcare in the United States through their focus on the collection, maintenance and use of quality data to support the information-intensive ...
The data management plan describes the activities to be conducted in the course of processing data. Key topics to cover include the SOPs to be followed, the clinical data management system (CDMS) to be used, description of data sources, data handling processes, data transfer formats and process, and quality control procedure