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It discusses the history of autism and autism advocacy, including issues such as the Refrigerator mother theory and the possibility of an autism epidemic. [ 1 ] [ 2 ] Donald Triplett , the first person diagnosed with autism, and [ 3 ] [ 4 ] [ 5 ] psychiatrist Leo Kanner are also covered, as is the ongoing [ 6 ] debate concerning the ...
Investigators working on autism-related projects, regardless of their funding source, are strongly encourages to submit any type of autism-related data generated in their laboratories. [10] After extensive consultations with the research community, NDAR has established a two-tiered submission strategy for investigators receiving NIH funding.
Sinclair, along with Xenia Grant and Donna Williams, formed Autism Network International (ANI). [2] Sinclair became the original coordinator of ANI. [ 3 ] Sinclair is an advocate for the anti-cure position on autism, arguing that autism is an integral part of a person's identity and should not be cured. [ 4 ]
ANI was started by Jim Sinclair, Kathy Grant, and Donna Williams in 1992. [1] The advocacy group is organized by autistic people for autistic people. [2] ANI started out as a pen pal group, but when they first met in person, "they felt a sense of belonging, of being understood, of having the same concepts and sharing a language, of being normal."
The network closed to new participants in 2019. IAN facilitates ongoing research in autism spectrum disorders (ASDs). The goal is to accomplish research that advances understanding and treatment of ASDs. IAN was established in 2006 at the Kennedy Krieger Institute, and is funded by Autism Speaks and the Simons Foundation. [1]
The Autistic Self Advocacy Network (ASAN) is an American 501(c)(3) nonprofit advocacy organization run by and for individuals on the autism spectrum. ASAN advocates for the inclusion of autistic people in decisions that affect them, including: legislation, depiction in the media, and disability services.
The Journal of Autism and Developmental Disorders is a monthly peer-reviewed medical journal covering research on all aspects of autism spectrum disorders and related developmental disabilities. The journal was established in 1971 as the Journal of Autism and Childhood Schizophrenia , obtaining its current title in 1979. [ 1 ]
There is disagreement within the autism community on whether to use person-first terminology (e.g., person with autism) or identity-first terminology (e.g., autistic person). The autism rights movement encourages the use of identity-first terminology [122] to stress that autism is a part of an individual's identity rather than a condition they ...