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Medical data, including patients' identity information, health status, disease diagnosis and treatment, and biogenetic information, not only involve patients' privacy but also have a special sensitivity and important value, which may bring physical and mental distress and property loss to patients and even negatively affect social stability and national security once leaked.
Clinical data standards are used to store and communicate information related to healthcare so that its meaning is unambiguous. They are used in clinical practice, in activity analysis and finding, and in research and development. There are many existing and proposed standards and many bodies working in this field.
Health information management's standards history is dated back to the introduction of the American Health Information Management Association, founded in 1928 "when the American College of Surgeons established the Association of Record Librarians of North America (ARLNA) to 'elevate the standards of clinical records in hospitals and other medical institutions.'" [3]
In November 1991, the Workgroup for Electronic Data Interchange (WEDI) was established in response to the challenge from the Bush administration, specifically, Louis Sullivan MD, Secretary of HHS, to reduce administrative costs in the nation's health care system by up to 10%.
Continuity of Care Document - The Continuity of Care Document (CCD) represents a core data set of the most relevant administrative, demographic, and clinical information facts about a patient's healthcare, covering one or more healthcare encounters. The primary use case for the CCD is to provide a snapshot in time containing the germane ...
Although there is a large group of people who oppose the selling of individual's medical information, there are groups such as the Health Benefits Coalition, the Healthcare Leadership Council, and the Health Insurance Association of America that are against the new reforms for data protection as it can ruin their work and profits. [12]
The Garda National Cyber Crime Bureau received the data from the United States Department of Justice through a mutual legal assistance treaty. [33] The Bureau provided the data to the HSE on 17 December 2021. [33] The HSE confirmed that said data was taken from its computers. [33] The HSE also contacted the Data Protection Commissioner about ...
The Japanese general public and mass media, in particularly, condemn leaks. Consequently, data leaks quickly result in losing customer trust, brand value, and ultimately profits. An example of this include, after a 2004 data leak, Softbank swiftly lost 107 billion yen and Benesse Corporation lost 940,000 customers after the data leak.