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The portal for medical data models is a German [1] and European [2] medical research infrastructure. It is an open-access metadata-repository initiated for scientific purposes that can generate, analyse, release and reuse medical forms.
The use of Clinical Data Repositories could provide a wealth of knowledge about patients, their medical conditions, and their outcome. The database could serve as a way to study the relationship and potential patterns between disease progression and management. The term "Medical Data Mining" has been coined for this method of research.
Interoperability between disparate clinical information systems requires common data standards or mapping of every transaction. However common data standards alone will not provide interoperability, and the other requirements are identified in "How Standards will Support Interoperability" from the Faculty of Clinical Informatics [2] and "Interoperability is more than technology: The role of ...
re3data.org is a global registry of research data repositories from all academic disciplines. It provides an overview of existing research data repositories in order to help researchers to identify a suitable repository for their data and thus comply with requirements set out in data policies. [1] [2] The registry went live in autumn 2012. [3]
Dryad is an international open-access repository of research data, especially data underlying scientific and medical publications (mainly of evolutionary, genetic, and ecology biology). Dryad is a curated general-purpose repository that makes data discoverable, freely reusable, and citable.
Scientific Knowledge Graph aggregating, deduplicating, enriching metadata of publications, research data, research software, and other products, with citations links and links to funders and grants - core service in support of the European Open Science Cloud: Free OpenAIRE AMKE (not-for-profit) OpenAlex: Multidisciplinary: 205,000,000 [46]
PubMed Central (PMC) is a free digital repository that archives open access full-text scholarly articles that have been published in biomedical and life sciences journals. As one of the major research databases developed by the National Center for Biotechnology Information (NCBI), PubMed Central is more than a document repository.
Janus clinical trial data repository is a clinical trial data repository (or data warehouse) standard as sanctioned by the U.S. Food and Drug Administration (FDA). It was named for the Roman god Janus (mythology), who had two faces, one that could see in the past and one that could see in the future.