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Involving patients in research contributes to new knowledge. Public involvement (or public and patient involvement, PPI) in medical research refers to the practice where people with health conditions (patients), carers and members of the public work together with researchers and influence what is researched and how.
Patient participation can include a broad spectrum of activities for human subjects during clinical trials and has become associated with several other terms such as patient involvement, patient engagement or decision-making. [citation needed] This includes agenda-setting, clinical guideline development, and clinical trial design. [75]
Public involvement (PI, formerly PPI, for Public and Patients' Involvement), in the context of health and care research, is the term for working with lay people (members of the general public, including patients and those close to them) as volunteers in influencing and shaping research. [1]
The Commission for Patient and Public Involvement in Health (CPPIH) was an independent, non-departmental public body sponsored by the UK Department of Health. [1] [2] The Commission was established by and act of Parliament on 10 December 2002 [3] with a remit "to establish a new system of patient and public involvement in health for England involving traditionally hard to reach groups ...
Long title: An Act to amend the law about the national health service; to establish and make provision in connection with a Commission for Patient and Public Involvement in Health; to make provision in relation to arrangements for joint working between NHS bodies and the prison service, and between NHS bodies and local authorities in Wales; to make provision in connection with the regulation ...
Public participation, also known as citizen participation or patient and public involvement, is the inclusion of the public in the activities of any organization or project. Public participation is similar to but more inclusive than stakeholder engagement .
[1] [2] This is known as patient and public involvement (PPI). Public involvement involves a working partnership between patients, caregivers, people with lived experience, and researchers to shape and influence what is researched and how. [5] PPI can improve the quality of research and make it more relevant and accessible.
Community-engaged research is planned in partnership with the community that is the intended target of the research. [6] It requires the development of partnerships between researchers and the community, cooperation and negotiation between parties, collaboration, and a commitment to addressing local health concerns. [7]