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There are many forms of PHI, with the most common being physical storage in the form of paper-based personal health records (PHR). Other types of PHI include electronic health records, wearable technology, and mobile applications. In recent years, there has been a growing number of concerns regarding the safety and privacy of PHI.
Under HIPAA, informed consent forms for research studies must document how protected health information will be kept private, potentially increasing barriers to participation. [ 66 ] These data suggest that HIPAA privacy rules may have negative effects on the cost and quality of medical research .
The physical medical records are the property of the medical provider (or facility) that prepares them. This includes films and tracings from diagnostic imaging procedures such as X-ray, CT, PET, MRI, ultrasound, etc. The patient, however, according to HIPAA, has a right to view the originals, and to obtain copies under law. [26]
The X12 834 EDI Enrollment Implementation Format is a standard file format in the United States for electronically exchanging health plan enrollment data between employers and health insurance carriers.
There is no federal law regarding ownership of medical records. HIPAA gives patients the right to access and amend their own records, but it has no language regarding ownership of the records. [27] Twenty-eight states and Washington, D.C., have no laws that define ownership of medical records. Twenty-one states have laws stating that the ...
Additionally, with people granted the right to review what was documented with their name, they are also able to find out if the "records have been disclosed" and are also given the right to make corrections. [1]