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Alex: The Life of a Child is a biography and film about the life and death of Alexandra Deford from cystic fibrosis. [1] After her death in 1980 at the age of eight, her father, Frank Deford, a sportswriter, was inspired to write a memoir about Alex three years later. The book depicts Alex's determination to make the best of her circumstances ...
Judah, a 14-year-old boy who was diagnosed with cystic fibrosis at just two weeks old was granted a wish by the Make-A-Wish Foundation to meet and record music with Jason Derulo
In childhood, Flanagan was diagnosed with cystic fibrosis. His sister, Patricia, died at age 21 of the same illness, which also claimed the life of his second sister, who died soon after birth. At age 14, in 1967, Flanagan was named the first poster child for the North Orange County chapter of the National Cystic Fibrosis Research Foundation. [1]
Claire Lucia Wineland (April 10, 1997 – September 2, 2018) was an American activist, author, speaker and social media personality. [2] [3] Through her non-profit organization, Claire's Place Foundation, she provided support to children and families affected by cystic fibrosis (CF).
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Younger patients with cystic fibrosis are to benefit from “life-changing” drugs after regulators authorised their use among babies, toddlers and reception-aged children.
Cystic fibrosis (also known as CF or mucoviscidosis) is an autosomal recessive genetic disorder affecting most critically the lungs, and also the pancreas, liver, and intestine.
Dorothy Hansine Andersen (May 15, 1901 – March 3, 1963) was the American physician and researcher who first identified and named cystic fibrosis.During her almost thirty year tenure at Babies Hospital of Columbia-Presbyterian Medical Center (now Morgan Stanley Children's Hospital), Andersen not only identified CF and its inheritance through a recessive gene, she was also at the forefront of ...