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The institute has raised and spent more than $100 million on research into effective treatments for ALS and practices open-source science. [19] After the discovery that the multiple sclerosis drug Gilenya might also be a treatment for ALS, the Institute enrolled 30 people in a Phase 2A clinical trial the drug in 2013, though it did not progress further.
ALS Therapy Development Institute is a non-profit biotechnology center, solely focused on ALS research. ALS TDI operates the world's largest research and development program and research center. PatientsLikeMe is an online community for people affected by life-changing illnesses, including ALS; Jamie Heywood at TED
Sean Forrester Scott (May 20, 1969 – February 9, 2009) was a self-educated disease activist and researcher, filmmaker, innovator, entrepreneur and until the time of his death, the president of the ALS Therapy Development Institute, the world's largest amyotrophic lateral sclerosis research center. [1]
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Augustine L. Nieto II (February 15, 1958 – February 22, 2023) [2] was the founder and chief executive of Life Fitness, as well as the chairman of Augie's Quest to Cure ALS, and the ALS Therapy Development Institute. He and his wife, Lynne, lived in Corona Del Mar, California, and had four children and eight grandchildren. [3]
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Repetitive transcranial magnetic stimulation had been studied in amyotrophic lateral sclerosis in small and poorly designed clinical trials; as of 2013, there was insufficient evidence to know whether rTMS is safe or effective for ALS. [13] One 2016 review of stem cell therapy trials found tentative evidence that intraspinal stem cell ...
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